Chronic Pain is Part of My Life

Accepting that chronic pain is part of my life now and for the foreseeable future is something that took an aweful lot of inner strife. You see, for five years I  have been battling to maintain some semblance of a  normal life, I refused to see myself as broken and believed if I just kept trying at some point everything would work out. Attending the chronic pain program made it so I couldn’t ignore the reality of my situation any longer.
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Chronic Pain is Just a Part of My Life

Self-worth, stamina, normalcy, parenting, fitness, finances, independence…

I sit in the the tiny classroom staring through tears at the white board with the words ‘What Has Chronic Pain Taken From You?’ written in black at the top. Green, red and blue words commingle in a kaleidescope of broken dreams, filling the board and causing my head to ache.
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The Never-Ending Back Story – Chapter 3

Chapter 1 ———————– Chapter 2
I have written a lot about my personal life lately, how happy I am with Mr. Wonderful, how I feel more complete and happy than I have in an awfully long time, if not ever, but I have neglected to even touch on what has been happening with my back, workman’s comp and my future health wise. The news is not any where near as positive as it was in my romantic life.
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Pros, Cons & the Grey Areas In-Between

Robert Plutchik's Wheel of Emotions I have been thinking a lot lately about the emotional turbulence I have dealt with throughout this ordeal. I have been trying to create mental pro and con lists in relation to surgery and have been unsuccessful as yet. There have to be good things that have come out of surgery but I have had a tough time teasing them out. It doesn’t help that my mood swings wildly from optimistic and hopeful to defeated and blah sometimes more than once a day, although it tends to rest on the downside more often than not. I have been trying to pinpoint what sets off these drastic transitions but have yet to discover their cause. I feel so many different things about this injury and the state of my life now I am not sure I can clearly articulate any single one or apply the terms pro and con, there is just too much grey area. So I thought that, like Susannah(a wonderful blogger whose life seems amazing and I am really not sure how she does it) helpfully suggested, I would try to work out some of the emotions bombarding me.

I am angry. Oh so angry, some days it borders on full blown rage. I am angry for many different reasons, from the loss of years of my life, to my physical limitations, to the way I have been treated by Workman’s Comp. (Who are trying to get me to do a gradual return to work starting in two weeks. I have not gone to physio once and have not seen my surgeon since October, so I am justifiably terrified and angry about the lack of medical knowledge the people forcing me back to work have.) I am angry about more than just the injury and the three years it has lingered for, I am angry that it caused a breakdown in my self-worth and brought me down a path of depression and uselessness. I am angry that I have had to grieve the life I had, where I could be carefree when hiking and feel completely confident in my body’s ability to function properly. I am angry that I am still with C., practically in the same position we were last year, and the year before that. I am angry that I can’t make this recovery any faster and I am especially angry that I have months before I will see if this surgery was a success.

Along with all this simmering anger comes resentment. I resent all the things I am angry about. I resent that I can’t be a fit, healthy and happy individual. I resent that I know things I could do that may help, but lack the desire to try. I resent that nothing has come easy in the past few years. I resent that so many people have said if I just forget about the surgery I will be better. I resent that I am depressed and struggling to want to live. I resent that workman’s comp guidelines for spinal surgery say you are fit for work 56 days after a spinal surgery, but that they don’t differentiate between a discectomy and a full on fusion with hardware. I resent that they don’t understand the underlying fear I feel when told I have to prepare myself for a return to work. I resent that I now have anxiety issues that I can’t seem to control. And I resent that I have to be on such a cocktail of meds to make my life tolerable in the psychological and pain control sense.

Fear has permeated my psyche and tainted my recovery from the beginning. I am so scared. So overwhelmingly terrified that thinking about another non-union and subsequent spinal fusion makes my breath catch in the very real beginnings of an anxiety attack. It starts off that I feel I can’t breathe then there is tingling in my hands and I get stars in my vision. Finally, if I can’t calm myself down I end up blacking out. It has only happened five or six times this year but it is certainly scary when it does. I am also terrified that I will never be able to be happy with where I am and what I am doing. I am terrified I won’t find a place where I feel like I belong and am loved and safe. I am afraid that I am going to fail. Fail in life, fail in healing, fail in being a good partner, just generally that I will fail and have been failing for a while.

Angry girl.

I have always felt like I underachieved, in university I wrote papers in a day because I knew I could get at least a B and didn’t fight for the A’s. It led me to feel like a fraud. It also made it hard to sink my teeth into anything I found really  interesting. I feel like I have been lost to myself for so long, or that I am not sure I ever knew myself to begin with. When this injury happened I had never had the opportunity to think about what I want out of life because I was so wrapped up in trying to make it work day to day. I don’t know how to go about learning what I want and need when it is a struggle to shower bi-daily. How do I start discovering new things when I am exhausted by the mere basics of existence?

All these negative emotions churn inside me so often it makes it difficult to realize the good emotions when they come around. (And to trust that they are real and not a farce created to hide what I see as my rotten bits.) I do feel gratitude – I am grateful that I can walk and that it is even possible to have spine surgery. I am grateful that I haven’t had to pay for my surgeries and I am grateful that I had the opportunity to have the best orthopaedic surgeon work with me. I am grateful for my parents support and their unconditional love. I am grateful for all the wonderful people I met and worked with in physio therapy and I am especially grateful that I had such an amazing advocate in my chiropractor and continue to have outstanding support from my family doctor as well. I am eternally grateful for this blog, even if I don’t use it as often as I should. I am indebted and indescribably grateful for my readers who have found my words worth perusing and every comment is a revelation and treasured.

So there are things I am grateful for and I know that my life is not all bad, doom and gloom. I just can’t seem to shake to feeling that there is something I should be doing, or could be doing that would make me want to get out of bed in the morning. That I have some larger goal than to work a menial job, but I have no idea what that goal is. I want and need a direction and goals desperately but can’t seem to find either.

What do you do when your sense of self is badly shaken? How do you motivate yourself in the morning? How do you eradicate guilt? (Another emotion I haven’t discussed here but experience an abundance of.) I guess the basis of my questions are what makes all the struggles worthwhile for you? How did you discover your self and your unique path in life? When did you remedy your view of yourself with your ideal self? When, and how, did you learn to accept the things you can change and find motivation for the things that can? Why does life seem so vibrant to some and so dreary to others?

There are a ton of strong, confident and utterly content women who read this blog, and maybe a couple of men. Winking smile I realize that you may not have an answer to all, or any, of these inquiries but if you can answer and would like to, I would love to hear from you. Even if you have no answers,  like me, knowing there are others who feel lost means  a lot.

As always, thanks so much for taking the time to read and comment. I appreciate it greatly and with sincerity.

                – S.

The Never-Ending Back Story–Chapter 2

The lumbar region in regards to the rest of th...

The lumbar region in regards to the rest of the spine.

It has been a while since my last post. I have no reasons to give other than I was in somewhat of a funk. There was nothing new to say so I had nothing to say at all. However, all that changed after confirming I would require further surgery on my lumbar spine on August 07. In fact I have been toying with this entry since then. What really threw  me off and is still making me feel ill prepared was the phone call I got two Mondays ago. I was expecting to have surgery around November or December, but they decided I needed it now and on August 27th they informed me I was scheduled for surgery on September 06th. On top of the surgery being scheduled early there is also the fact that I moved five hours away at the beginning of this month, so essentially I paid close to $600 to stay at a place for three days this month. Urgh! Continue reading